R.S.D Painkillers Addiction?
Question by Michelle: R.S.D painkillers addiction?
My mother has had RDS since i was about 12. She has lied about alot of the things that are happening to her.. She has never once told us it could go into remission. She says nothing else works except the pain killers. I understand she is in pain and I understand she is not going to be the same.. But since she got sick ( they found it in the very very very early stages) she has done nothing.. Most days she does not get up . She doesnt get dressed and she expects everyone to do everything for her. Her house is a total disaster. She has become a hoarder. She has been a addict her whole life and is now using the rsd as an excuse to get high.. She is also doing cocaine while using the pain killers. My question is has anyone else experanced this with the dieseas and is there any way to get her off these pain meds? she has tried all the other stuff .. I dont even think she knows if she is actually in pain or not .. She is not the same anymore .. please i need my mom back.
u should email me .. mdj61709@yahoo,com !
Best answer:
Answer by Beautiful Minded
My mother was also diagnosed with RSD when I was the same age. And I was very surprised to read this because I have had a lot of similar things happen with my mom. Since the disease is so rare its hard to find other people to compare to. My mother has never been addicted to her pain meds but is had had an addiction with meth and because of that i have also questioned the amount of pain she is really in. How can someone in so much pain or with this disease one day do all this stuff and be fine and then sleep for days on end after that. One day shes up and then shes down for a couple. She does nothing but sleep all the time and if it was not for her one friend she would never get anything done. Her house also went to crap and I wouldn’t call it hoarding as much as it is pure laziness. She is not bothered by the piles of garbage or dog poop every where. But anyways I have also questioned her pain levels and if she really has this disease. I have also read though that with RSD comes a lot of mental illness as well. Who really knows it seems as though you and I have very similar stories with a lot to say and not enough time to say it on here. I also feel your pain about wanting your mom back and I am unsure as to how old you are buy I am now 24 and have kind of just let her go. She probably like my mom also has a lot of mental illness as well and until that is treated and dealt with you can not help her with her addiction. I hope something I said here was helpful its just that our stories have so many parts to it its hard not to jump all over the place.
Answer by Loz
To both of you – my sympathies both to yourselves and to your mothers.
You’re questioning how much pain your mothers might really be in. I have had CRPS/RSD for nearly 13 years now. and the pain is nothing you can imagine unless you have lived it. It feels like your bones are being ripped apart, like your skin has been scoured, burned and then set on fire for good measure. Your muscles burn, cramp and spasm. I fell and broke my back in eight places last year – and the fracture pain was not as bad as the CRPS pain.
Remission – full remission is highly unlikely with long-standing CRPS. As far as reliance on pain meds go – without strong meds… I wouldn’t be sending you this reply. Even with them it’s hard enough. Michelle – are you sure your mum is truly ‘addicted’ to them? What I mean is – is she taking them to try to manage her pain or is she trying to get a high from them?
Beautiful Minded – what you have to realise is that with any chronic illness, including CRPS, we have good days and bad days. I am mostly in bed, but I still try to cook (or at least prepare) tea for my family each day. I’ll do baking or housework when I have a good few hours…but I tend to pay for that with a severe flare that sends me back to bed. On a couple of occasions when I’ve overdone things really badly, I’ve had such severe flares I have needed hospitalisation to control the pain.
And – CRPS/RSD does NOT cause mental illness!! Nor is it caused by mental illness.
If either of you wants to email me, you’re more than welcome. My email is [email protected]
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